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Research

Publications: Dr Emma Lidington

Pilz MJ, Rothmund M, Lidington E, Piccinin C, Arraras JI, Groenvold M, Holzner B, Leeuwen M et al. ( 2023 ) . Content comparison of the EORTC CAT Core, SF‐36, FACT‐G, and PROMIS role and social functioning measures based on the International Classification of Functioning, Disability and Health . Psycho-Oncology vol. 32 , ( 9 ) 1372 - 1384 .
Schut AW, Bruin LE, Rooij BH, Lidington E, Timbergen MJM, Graaf WTA, Houdt WJ, Bonenkamp JJ et al. ( 2023 ) . Physical symptom burden in patients with desmoid‐type fibromatosis and its impact on health‐related quality of life and healthcare use . Cancer Medicine vol. 12 , ( 12 ) 13661 - 13674 .
Rothmund M, Pilz MJ, Egeter N, Lidington E, Piccinin C, Arraras JI, Grønvold M, Holzner B et al. ( 2023 ) . Patient‐reported outcome measures for emotional functioning in cancer patients: Content comparison of the EORTC CAT Core, FACT‐G, HADS, SF‐36, PRO‐CTCAE, and PROMIS instruments . Psycho-Oncology vol. 32 , ( 4 ) 628 - 639 .
Schut A-R, Lidington E, Timbergen M, Younger E, van der Graaf W, van Houdt W, Bonenkamp J, Jones R et al. ( 2023 ) . Unraveling Desmoid-Type Fibromatosis-specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes . European Journal of Surgical Oncology vol. 49 , ( 2 )
Schurr T, Loth F, Lidington E, Piccinin C, Arraras J, Groenvold M, Holzner B, van Leeuwen M et al. ( 2023 ) . Patient-reported outcome measures for physical function in cancer patients: content comparison of the EORTC CAT Core, EORTC QLQ-C30, SF-36, FACT-G, and PROMIS measures using the International Classification of Functioning, Disability and Health . BMC Medical Research Methodology vol. 23 , ( 1 )
Lidington E, Hogan H, Gandolfi A, Lawrence J, Younger E, Cho H, Peckitt C, Mohammed K et al. ( 2022 ) . Assessing the collection and reporting of patient-reported outcome data in interventional cancer trials: a single institution, retrospective systematic evaluation . Journal of Patient-Reported Outcomes vol. 6 , ( 1 )
Schut A-RW, Lidington E, Timbergen MJM, Younger E, van der Graaf WTA, van Houdt WJ, Bonenkamp JJ, Jones RL et al. ( 2022 ) . Unraveling Desmoid-Type Fibromatosis-Specific Health-Related Quality of Life: Who Is at Risk for Poor Outcomes . Cancers vol. 14 , ( 12 )
Lidington E, Giesinger JM, Janssen SHM, Tang S, Beardsworth S, Darlington A-S, Starling N, Szucs Z et al. ( 2022 ) . Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer . Quality of Life Research vol. 31 , ( 9 ) 2717 - 2727 .
den Hollander D, Lidington E, Singer S, Sodergren SC, Salah S, Fiore M, Benson C, Desar IME et al. ( 2022 ) . ‘I thought I had fibroids, and now I don’t’: a mixed method study on health-related quality of life in uterine sarcoma patients . Health and Quality of Life Outcomes vol. 20 , ( 1 )
Darlington A-S, Sodergren SC, Lidington E, van der Meer DJ, Husson O ( 2022 ) . Quality of Life in Adolescents and Young Adults with Cancer . Handbook of Quality of Life in Cancer , Springer Nature
Casillas JN, Bolano C, Schwartz LF, Ganz PA, Kahn K, Stuber M, Bastani R, Morales S et al. ( 2022 ) . A Survivorship Educational Tool for Latino Adolescent and Young Adult Cancer Survivors . Health Promotion Practice vol. 23 , ( 5 ) 861 - 873 .
Schut A-RW, Lidington E, Timbergen MJM, Younger E, van der Graaf WTA, van Houdt WJ, Bonenkamp JJ, Jones RL et al. ( 2022 ) . Development of a Disease-Specific Health-Related Quality of Life Questionnaire (DTF-QoL) for Patients with Desmoid-Type Fibromatosis . Cancers vol. 14 , ( 3 )
van Leeuwen M, Kieffer JM, Young TE, Annunziata MA, Arndt V, Arraras JI, Autran D, Hani HB et al. ( 2022 ) . Phase III study of the European Organisation for Research and Treatment of Cancer Quality of Life cancer survivorship core questionnaire . Journal of Cancer Survivorship vol. 17 , ( 4 ) 1111 - 1130 .
Casillas JN, Ganz PA, Kahn K, Stuber M, Bastani R, Schwartz LF, Morales S, Macadangdang J et al. ( 2021 ) . Improving Cancer Survivorship Care for Latino Adolescent, Young Adult Survivors through Community-Partnered Participatory Research . Journal of Participatory Research Methods vol. 2 , ( 3 )
van Eck I, Hollander DD, Lidington E, Hentschel L, Eichler M, Salah S, Singer S, Pinto M et al. ( 2021 ) . Health-Related Quality of Life Issues Experienced by Thoracic and Breast Sarcoma Patients: A Rare and Understudied Group . Journal of Clinical Medicine vol. 10 , ( 22 )
Soomers VLMN, Lidington E, Sirohi B, Gonzalez MA, Darlington A-S, van der Graaf WTA, Husson O ( 2021 ) . The Prolonged Diagnostic Pathway of Young Adults (Aged 25–39) with Cancer in the United Kingdom: Results from the Young Adult Cancer Patient Journey Study . Journal of Clinical Medicine vol. 10 , ( 20 )
Lidington E, Darlington A-S, Din A, Stanway S, Banerjee S, Szucs Z, Gonzalez M, Sharma A et al. ( 2021 ) . Describing Unmet Supportive Care Needs among Young Adults with Cancer (25–39 Years) and the Relationship with Health-Related Quality of Life, Psychological Distress, and Illness Cognitions . Journal of Clinical Medicine vol. 10 , ( 19 )
Schut A-RW, Timbergen MJM, Lidington E, Grünhagen DJ, van der Graaf WTA, Sleijfer S, van Houdt WJ, Bonenkamp JJ et al. ( 2021 ) . The Evaluation of Health-Related Quality of Life Issues Experienced by Patients with Desmoid-Type Fibromatosis (The QUALIFIED Study)—A Protocol for an International Cohort Study . Cancers vol. 13 , ( 13 )
Lidington E, Vlooswijk C, Stallard K, Travis E, Younger E, Edwards P, Nandhabalan M, Hunter N et al. ( 2021 ) . ‘This is not part of my life plan’: A qualitative study on the psychosocial experiences and practical challenges in young adults with cancer age 25 to 39 years at diagnosis . European Journal of Cancer Care vol. 30 , ( 5 )
Kaal SEJ, Lidington EK, Prins JB, Jansen R, Manten-Horst E, Servaes P, van der Graaf WTA, Husson O ( 2021 ) . Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals . Journal of Clinical Medicine vol. 10 , ( 9 )
Lidington E, Darlington AS, Vlooswijk C, Beardsworth S, McCaffrey S, Tang S, Stallard K, Younger E et al. ( 2021 ) . Beyond Teenage and Young Adult Cancer Care: Care Experiences of Patients Aged 25–39 Years Old in the UK National Health Service . Clinical Oncology vol. 33 , ( 8 ) 494 - 506 .
Dumas L, Lidington E, Appadu L, Jupp P, Husson O, Banerjee S ( 2021 ) . Exploring Older Women’s Attitudes to and Experience of Treatment for Advanced Ovarian Cancer: A Qualitative Phenomenological Study . Cancers vol. 13 , ( 6 )
Lidington EK, Smrke A, Ingley KM, Strauss SJ, Husson O, Younger E ( 2020 ) . Cancer care and well‐being in adolescents and young adults during the coronavirus disease 2019 pandemic: A UK sarcoma perspective . Cancer vol. 126 , ( 24 ) 5359 - 5360 .
Younger E, Smrke A, Lidington E, Farag S, Ingley K, Chopra N, Maleddu A, Augustin Y et al. ( 2020 ) . Health-Related Quality of Life and Experiences of Sarcoma Patients during the COVID-19 Pandemic . Cancers vol. 12 , ( 8 )
Staal DP, Vlooswijk C, Mols F, Lidington E, van der Graaf WTA, Bijlsma RM, Husson O ( 2020 ) . Diagnosed with a common cancer at an unusual age: causal attributions of survivors of adolescent and young adult colorectal cancer . Supportive Care in Cancer vol. 29 , ( 1 ) 409 - 416 .
Lidington E, McGrath SE, Noble J, Stanway S, Lucas A, Mohammed K, van der Graaf W, Husson O ( 2020 ) . Evaluating a digital tool for supporting breast cancer patients: a randomized controlled trial protocol (ADAPT) . Trials vol. 21 , ( 1 )
Casillas JN, Kao RL, Macadangdang J, Lidington E, Hsu MS, Gan H, Roach GD, Upadhyay S et al. ( 2018 ) . Improving Fertility Preservation Discussions for Adolescent and Young Adult Male Oncology Patients . Oncology Issues vol. 33 , ( 5 ) 16 - 26 .
Husson O, Lidington E, Younger E, van der Graaf WT ( 2018 ) . Young adults: a unique group in cancer epidemiological research . The Lancet Oncology vol. 19 , ( 2 )
Casillas J, Goyal A, Bryman J, Alquaddoomi F, Ganz PA, Lidington E, Macadangdang J, Estrin D ( 2017 ) . Development of a text messaging system to improve receipt of survivorship care in adolescent and young adult survivors of childhood cancer . Journal of Cancer Survivorship vol. 11 , ( 4 ) 505 - 516 .