Publications: Prof Elizabeth Sampson

Sampson E, Davies N, Vickerstaff V ( 2025 ) . Evaluation of the psychometric properties of PainChek in older general hospital patients with dementia . Age and Ageing

Anantapong K, Jiraphan A, Aunjitsakul W, Sathaporn K, Werachattawan N, Teetharatkul T, Wiwattanaworaset P, Davies N et al. ( 2024 ) . Behavioural and psychological symptoms of people with dementia in acute hospital settings: a systematic review and meta-analysis . Age and Ageing

Gallagher J, Evans C, Sampson E, Barclay S, Ward J ( 2024 ) . The Janus Face of Person‐Centred Care . International Journal of Geriatric Psychiatry vol. 39 , ( 12 )

Ellis-Smith C, Gillam J, Aworinde J, Dar A, Bhojwani A, Carrasco KH, Farnood A, Crabtree S et al. ( 2024 ) . FC57: Implementation and feasibility testing of a co-designed palliative dementia intervention: Empowering Better End of life Dementia Care Framework (EMBED-Care Framework) . International Psychogeriatrics vol. 36 , ( S1 ) 76 - 76 .

Hui EK, Tischler V, Wong GHY, Gibbor L, Lousley C, Bell G, Jelen M, James T et al. ( 2024 ) . Virtual individual cognitive stimulation therapy (V-iCST): Mixed methods feasibility randomised controlled trial . International Journal of Clinical and Health Psychology vol. 24 , ( 4 )

Bauernfreund Y, Launders N, Favarato G, Hayes JF, Osborn D, Sampson EL ( 2024 ) . Delirium risk and mortality in people with pre-existing severe mental illness: a retrospective cohort study using linked datasets in England . Psychological Medicine vol. 54 , ( 14 ) 3974 - 3984 .

Davies N, Sampson EL, Aworinde J, Gillam J, Kenten C, Moore K, Phillips B, Harvery C et al. ( 2024 ) . Co-designing a palliative dementia care Framework to support holistic assessment and decision making: The EMBED-Care Framework . Health Expectations

Yorganci E, Bone AE, Evans CJ, Sampson EL, Stewart R, Sleeman KE ( 2024 ) . Estimating the escalating future need for palliative care among people living with dementia . Palliative Medicine vol. 38 , ( 9 ) 1069 - 1071 .

Parker C, Ali S, Sampson E, Sivapathasuntharam D ( 2024 ) . 2284 NHS staff experiences of racism from patients and carers: survey from a London older persons service . Age and Ageing vol. 53 , ( Supplement_3 )

Davies N, Aker N, West E, Rait G, Sampson EL ( 2024 ) . Acceptability of Using a Decision Aid to Support Family Carers of People With Dementia Towards the End of Life: A Qualitative Study . Health Expectations vol. 27 , ( 3 )

Nishimura M, Dening KH, Sampson EL, de Oliveira Vidal EI, Nakanishi M, Davies N, Abreu W, Kaasalainen S et al. ( 2024 ) . A palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study . Palliative Medicine vol. 38 , ( 4 ) 457 - 470 .

White N, Bazo-Alvarez JC, Koopmans M, West E, Sampson EL ( 2024 ) . Understanding the association between pain and delirium in older hospital inpatients: systematic review and meta-analysis . Age and Ageing vol. 53 , ( 4 )

Davies N, Sampson E, Aworinde T, Gillam J, Kenten C, Phillips B, Evans C, Ellis-Smith C ( 2023 ) . EMPOWERING BETTER END-OF-LIFE DEMENTIA CARE (EMBED-CARE): A DIGITAL CLINICAL DECISION SUPPORT FRAMEWORK . Innovation in Aging vol. 7 , ( Supplement_1 ) 552 - 552 .

Davies N, West E, Smith EM, Vickerstaff V, Manthorpe J, Shah M, Rait G, Wilcock J et al. ( 2023 ) . Development of a decision‐support framework to support professionals and promote comfort among older hospital inpatients living with dementia . Health Expectations vol. 27 , ( 1 )

Sadeghirad B, Dodsworth BT, Gelsomino NS, Goettel N, Spence J, Buchan TA, Crandon HN, Baneshi MR et al. ( 2023 ) . Perioperative Factors Associated With Postoperative Delirium in Patients Undergoing Noncardiac Surgery . JAMA Network Open vol. 6 , ( 10 )

Yorganci E, Sleeman KE, Sampson EL, Stewart R, Sampson EL, Evans CJ, Sleeman KE, Kupeli N et al. ( 2023 ) . Survival and critical care use among people with dementia in a large English cohort . Age and Ageing vol. 52 , ( 9 )

Sampson E, Fox K ( 2023 ) . No true health without mental health . Future Healthcare Journal vol. 10 , ( 2 ) 96 - 97 .

Anantapong K, Bruun A, Walford A, Smith C, Manthorpe J, Sampson E, Davies N ( 2023 ) . Codesign methods when developing a decision guide for eating and drinking problems among hospital patients with severe dementia . Alzheimer's & Dementia vol. 19 , ( S6 )

Lai Y-C, Tsai K-T, Ho C-H, Liao J-Y, Tseng W-Z, Petersen I, Wang Y-C, Chen Y-H et al. ( 2023 ) . Mortality rate and its determinants among people with dementia receiving home healthcare: a nationwide cohort study . Internal and Emergency Medicine vol. 18 , ( 7 ) 2121 - 2130 .

Sampson E ( 2023 ) . Implementing Digital Cognitive-Behavioral Therapy for Major Depressive Disorder in Routine Psychiatric Appointments: A Pilot Project in a Rural Population . Journal of Psychosocial Nursing and Mental Health Services vol. 61 , ( 10 ) 44 - 51 .

Nimmons D, Manthorpe J, West E, Rait G, Sampson EL, Iliffe S, Davies N ( 2023 ) . Views of people living with dementia and their carers on their present and future: a qualitative study . BMC Palliative Care vol. 22 , ( 1 )

Moore KJ, Crawley S, Fisher E, Cooper C, Vickerstaff V, Sampson EL ( 2023 ) . Exploring how family carers of a person with dementia manage pre‐death grief: A mixed methods study . International Journal of Geriatric Psychiatry vol. 38 , ( 3 )

Tsui A, Yeo N, Searle SD, Bowden H, Hoffmann K, Hornby J, Goslett A, Weston-Clarke M et al. ( 2023 ) . Extremes of baseline cognitive function determine the severity of delirium: a population study . Brain vol. 146 , ( 5 ) 2132 - 2141 .

Anantapong K, Sampson EL, Davies N ( 2023 ) . A shared decision‐making model about care for people with severe dementia: A qualitative study based on nutrition and hydration decisions in acute hospitals . International Journal of Geriatric Psychiatry vol. 38 , ( 2 )

Faheem W, Nandra T, Richardson S, Saliu D, Wilson D, Jackson TA, Magill L, McCluskey L et al. ( 2023 ) . Increasing frailty is associated with higher prevalence and reduced recognition of delirium in older hospitalised inpatients: results of a multi-centre study . European Geriatric Medicine vol. 14 , ( 2 ) 325 - 332 .

Anantapong K, Bruun A, Walford A, Smith CH, Manthorpe J, Sampson EL, Davies N ( 2023 ) . Co‐design development of a decision guide on eating and drinking for people with severe dementia during acute hospital admissions . Health Expectations vol. 26 , ( 2 ) 613 - 629 .

Anantapong K, Davies N, Sampson E ( 2022 ) . Conversations and decision‐making about nutrition and hydration for people with severe dementia in acute hospitals: a qualitative study . Alzheimer's & Dementia vol. 18 , ( S9 )

Davies N, Aker N, Vickerstaff V, Sampson E, Rait G ( 2022 ) . SUPPORTING DECISIONS ABOUT END-OF-LIFE CARE IN DEMENTIA: FEASIBILITY OF A DECISION AID . Innovation in Aging vol. 6 , ( Supplement_1 ) 237 - 237 .

Anantapong K, Davies N, Sampson EL ( 2022 ) . Communication between the multidisciplinary team and families regarding nutrition and hydration for people with severe dementia in acute hospitals: a qualitative study . Age and Ageing vol. 51 , ( 11 )

Dunford E, West E, Sampson EL ( 2022 ) . Psychometric evaluation of the Pain Assessment in Advanced Dementia scale in an acute general hospital setting . International Journal of Geriatric Psychiatry vol. 37 , ( 12 )

Sampson EL, Graham F, Teodorczuk A ( 2022 ) . Is There a Role for Medication in Managing Delirium with Dementia? . Geriatrics vol. 7 , ( 5 )

Llewellyn H, Dulley L, Higgs P, Louis D, Sampson E, Stone P, Thorne L ( 2022 ) . Brain Tumour Diagnosis and Relationships Among Patients: A Social Science Perspective on Changing Tumour Classification . Neuro-Oncology vol. 24 , ( Supplement_4 ) iv13 - iv13 .

Davies N, Aker N, Vickerstaff V, Sampson EL, Rait G ( 2022 ) . A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life . Palliative Medicine vol. 36 , ( 9 ) 1432 - 1439 .

Bauernfreund Y, Launders N, Favarato G, Hayes JF, Osborn D, Sampson EL ( 2022 ) . Incidence and associations of hospital delirium diagnoses in 85,979 people with severe mental illness: A data linkage study . Acta Psychiatrica Scandinavica vol. 147 , ( 5 ) 516 - 526 .

Sampson EL, Goldberg SE ( 2022 ) . Hospitals, people with cognitive impairment and agitation: how virtual reality could improve real world care . Age and Ageing vol. 51 , ( 7 )

West E, Nair P, Aker N, Sampson EL, Moore K, Manthorpe J, Rait G, Walters K et al. ( 2022 ) . Rapid development of a COVID‐19 care planning decision‐aid for family carers of people living with dementia . Health Expectations vol. 25 , ( 4 ) 1954 - 1966 .

Nair P, Barrado-Martín Y, Anantapong K, Moore K, Smith C, Sampson E, Manthorpe J, Walters K et al. ( 2022 ) . Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom . Nutrients vol. 14 , ( 12 )

Nishimura M, Dening KH, Sampson EL, de Oliveira Vidal EI, de Abreu WC, Kaasalainen S, Eisenmann Y, Dempsey L et al. ( 2022 ) . Cross-cultural conceptualization of a good end of life with dementia: a qualitative study . BMC Palliative Care vol. 21 , ( 1 )

Krooupa A-M, Stone P, McKeever S, Seddon K, Davis S, Sampson EL, Tookman A, Martin J et al. ( 2022 ) . Do palliative care patients and relatives think it would be acceptable to use Bispectral index (BIS) technology to monitor palliative care patients’ levels of consciousness? A qualitative exploration with interviews and focus groups for the I-CAN-CARE research programme . BMC Palliative Care vol. 21 , ( 1 )

Yorganci E, Stewart R, Sampson EL, Sleeman KE ( 2022 ) . Patterns of unplanned hospital admissions among people with dementia: from diagnosis to the end of life . Age and Ageing vol. 51 , ( 5 )

Tsui A, Searle SD, Bowden H, Hoffmann K, Hornby J, Goslett A, Weston-Clarke M, Howes LH et al. ( 2022 ) . The effect of baseline cognition and delirium on long-term cognitive impairment and mortality: a prospective population-based study . The Lancet Healthy Longevity vol. 3 , ( 4 ) e232 - e241 .

Crawley S, Moore K, Vickerstaff V, Fisher E, Cooper C, Sampson EL ( 2022 ) . How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia? . Dementia vol. 21 , ( 4 ) 1270 - 1288 .

Armstrong M, Aker N, Nair P, Walters K, Barrado‐Martin Y, Kupeli N, Sampson EL, Manthorpe J et al. ( 2022 ) . Trust and inclusion during the Covid‐19 pandemic: Perspectives from Black and South Asian people living with dementia and their carers in the UK . International Journal of Geriatric Psychiatry vol. 37 , ( 3 )

Fisher E, Crawley S, Sampson EL, Cooper C, Jones R, Anantapong K, Moore K ( 2022 ) . Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia . Dementia vol. 21 , ( 3 ) 934 - 956 .

Crawley S, Sampson EL, Moore KJ, Kupeli N, West E ( 2022 ) . Grief in family carers of people living with dementia: A systematic review . International Psychogeriatrics vol. 35 , ( 9 ) 477 - 508 .

Chen P-J, Smits L, Miranda R, Liao J-Y, Petersen I, Van den Block L, Sampson EL ( 2022 ) . Impact of home healthcare on end-of-life outcomes for people with dementia: a systematic review . BMC Geriatrics vol. 22 , ( 1 )

Steel A, Hopwood H, Goodwin E, Sampson EL ( 2022 ) . Multidisciplinary residential home intervention to improve outcomes for frail residents . BMC Health Services Research vol. 22 , ( 1 )

Owen L, Steel A, Goffe K, Pleming J, Sampson EL ( 2022 ) . A multidisciplinary simulation programme to improve advance care planning skills and engagement across primary and secondary care . Clinical Medicine vol. 22 , ( 1 ) 51 - 57 .

Sawyer JM, Higgs P, Porter JDH, Sampson EL ( 2021 ) . New public health approaches to palliative care, a brave new horizon or an impractical ideal? An Integrative literature review with thematic synthesis . Palliative Care and Social Practice vol. 15 ,

Walsh SC, Murphy E, Devane D, Sampson EL, Connolly S, Carney P, O'Shea E ( 2021 ) . Palliative care interventions in advanced dementia . vol. 2021 , ( 9 )

Aker N, West E, Davies N, Moore KJ, Sampson EL, Nair P, Kupeli N ( 2021 ) . Challenges faced during the COVID-19 pandemic by family carers of people living with dementia towards the end of life . BMC Health Services Research vol. 21 , ( 1 )

La Frenais F, Vickerstaff V, Cooper C, Livingston G, Stone P, Sampson EL ( 2021 ) . Psychotropic prescribing for English care home residents with dementia compared with national guidance: findings from the MARQUE national longitudinal study . BJPsych Open vol. 7 , ( 5 )

Scher C, Crawley S, Cooper C, Sampson EL, Moore KJ ( 2021 ) . Usefulness and acceptability of an animation to raise awareness to grief experienced by carers of individuals with dementia . Dementia vol. 21 , ( 2 ) 363 - 379 .

Davies N, Barrado-Martín Y, Vickerstaff V, Rait G, Fukui A, Candy B, Smith CH, Manthorpe J et al. ( 2021 ) . Enteral tube feeding for people with severe dementia . vol. 2021 , ( 8 )

West E, Kupeli N, Moore K, Sampson E, Aker N, Nair P, Davies N ( 2021 ) . Rapid development of a decision-aid for people with dementia and their families during COVID-19 . European Psychiatry vol. 64 , ( Suppl 1 ) s94 - s95 .

West E, Moore K, Kupeli N, Sampson E, Nair P, Aker N, Davies N ( 2021 ) . Rapid review of decision-making for place of care and death in older people: Lessons for COVID-19 . European Psychiatry vol. 64 , ( Suppl 1 ) s273 - s273 .

Yorganci E, Sampson EL, Gillam J, Aworinde J, Leniz J, Williamson LE, Cripps RL, Stewart R et al. ( 2021 ) . Quality indicators for dementia and older people nearing the end of life: A systematic review . Journal of the American Geriatrics Society vol. 69 , ( 12 ) 3650 - 3660 .

Davies N, Sampson EL, West E, DeSouza T, Manthorpe J, Moore K, Walters K, Dening KH et al. ( 2021 ) . A decision aid to support family carers of people living with dementia towards the end‐of‐life: Coproduction process, outcome and reflections . Health Expectations vol. 24 , ( 5 ) 1677 - 1691 .

Sleeman KE, Timms A, Gillam J, Anderson JE, Harding R, Sampson EL, Evans CJ ( 2021 ) . Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis . BMC Palliative Care vol. 20 , ( 1 )

Browne B, Kupeli N, Moore KJ, Sampson EL, Davies N ( 2021 ) . Defining end of life in dementia: A systematic review . Palliative Medicine vol. 35 , ( 10 ) 1733 - 1746 .

West E, Sampson EL, Davies N ( 2021 ) . 529 ASSESSING DISCOMFORT AND DISTRESS IN OLDER INPATIENTS WITH DEMENTIA . Age and Ageing vol. 50 , ( Supplement_2 ) ii14 - ii18 .

Anantapong K, Barrado-Martín Y, Nair P, Rait G, Smith CH, Moore KJ, Manthorpe J, Sampson EL et al. ( 2021 ) . How do people living with dementia perceive eating and drinking difficulties? A qualitative study . Age and Ageing vol. 50 , ( 5 ) 1820 - 1828 .

Sampson EL, Wright J, Dove J, Mukadam N ( 2021 ) . Psychiatric liaison service referral patterns during the UK COVID-19 pandemic: An observational study . The European Journal of Psychiatry vol. 36 , ( 1 ) 35 - 42 .

Peisah C, Sampson EL, Rabheru K, Wand A, Lapid M ( 2021 ) . The Human Rights of Older People With Mental Health Conditions and Psychosocial Disability to a Good Death and Dying Well . American Journal of Geriatric Psychiatry vol. 29 , ( 10 ) 1041 - 1046 .

Davies N, De Souza T, Rait G, Meehan J, Sampson EL ( 2021 ) . Developing an applied model for making decisions towards the end of life about care for someone with dementia . PLOS ONE vol. 16 , ( 5 )

West E, Nair P, Barrado-Martin Y, Walters KR, Kupeli N, Sampson EL, Davies N ( 2021 ) . Exploration of the impact of the COVID-19 pandemic on people with dementia and carers from black and minority ethnic groups . BMJ Open vol. 11 , ( 5 )

Barrado‐Martín Y, Nair P, Anantapong K, Aker N, Moore KJ, Smith CH, Rait G, Sampson EL et al. ( 2021 ) . Family caregivers' and professionals' experiences of supporting people living with dementia’s nutrition and hydration needs towards the end of life . Health & Social Care in the Community vol. 30 , ( 1 ) 307 - 318 .

Crowther G, Chinnasamy M, Bradbury S, Shaw L, Ormerod S, Wilkinson A, Chubb R, Daher M et al. ( 2021 ) . Trends in referrals to liaison psychiatry teams from UK emergency departments for patients over 65 . International Journal of Geriatric Psychiatry vol. 36 , ( 9 ) 1415 - 1422 .

Barrado-Martín Y, Nair P, Anantapong K, Moore KJ, Smith CH, Rait G, Sampson EL, Manthorpe J et al. ( 2021 ) . 14 Development of a resource for family carers of people living with dementia with nutrition and hydration difficulties towards the end-of-life . BMJ Supportive & Palliative Care . Conference: Oral presentations vol. 11 , a6 - a6 .

Barrado-Martín Y, Nair P, Anantapong K, Aker N, Moore KJ, Smith CH, Rait G, Sampson EL et al. ( 2021 ) . 33 Family carers and professionals’ experiences of managing people living with dementia – nutrition and hydration needs towards the end-of-life . BMJ Supportive & Palliative Care . Conference: Poster presentations vol. 11 , a20 - a20 .

La Frenais F, Vickerstaff V, Cooper C, Livingston G, Stone P, Sampson EL ( 2021 ) . Factors influencing prescription and administration of analgesic medication: A longitudinal study of people with dementia living in care homes . International Journal of Geriatric Psychiatry vol. 36 , ( 9 ) 1354 - 1361 .

Downs M, Blighe A, Carpenter R, Feast A, Froggatt K, Gordon S, Hunter R, Jones L et al. ( 2021 ) . A complex intervention to reduce avoidable hospital admissions in nursing homes: a research programme including the BHiRCH-NH pilot cluster RCT . Programme Grants for Applied Research vol. 9 , ( 2 ) 1 - 200 .

van de Rijt LJM, Feast AR, Vickerstaff V, Sampson EL, Lobbezoo F ( 2021 ) . Oral function and its association with nutrition and quality of life in nursing home residents with and without dementia: A cross‐sectional study . Gerodontology vol. 38 , ( 4 ) 404 - 413 .

Rawle MJ, McCue L, Sampson EL, Davis D, Vickerstaff V ( 2021 ) . Anticholinergic Burden Does Not Influence Delirium Subtype or the Delirium–Mortality Association in Hospitalized Older Adults: Results from a Prospective Cohort Study . Drugs & Aging vol. 38 , ( 3 ) 233 - 242 .

West E, Moore K, Kupeli N, Sampson EL, Nair P, Aker N, Davies N ( 2020 ) . Rapid review of decision-making for place of care and death in older people: lessons for COVID-19 . Age and Ageing vol. 50 , ( 2 ) 294 - 306 .

Sampson EL, Feast A, Blighe A, Froggatt K, Hunter R, Marston L, McCormack B, Nurock S et al. ( 2020 ) . Pilot cluster randomised trial of an evidence-based intervention to reduce avoidable hospital admissions in nursing home residents (Better Health in Residents of Care Homes with Nursing—BHiRCH-NH Study) . BMJ Open vol. 10 , ( 12 )

Chen P-J, Ho C-H, Liao J-Y, Smits L, Hsiung CA, Yu S-J, Zhang K-P, Petersen I et al. ( 2020 ) . The Association between Home Healthcare and Burdensome Transitions at the End-of-Life in People with Dementia: A 12-Year Nationwide Population-Based Cohort Study . International Journal of Environmental Research and Public Health vol. 17 , ( 24 )

Anantapong K, Davies N, Chan J, McInnerney D, Sampson EL ( 2020 ) . Mapping and understanding the decision-making process for providing nutrition and hydration to people living with dementia: a systematic review . BMC Geriatrics vol. 20 , ( 1 )

Barrado‐Martín Y, Hatter L, Moore KJ, Sampson EL, Rait G, Manthorpe J, Smith CH, Nair P et al. ( 2020 ) . Nutrition and hydration for people living with dementia near the end of life: A qualitative systematic review . Journal of Advanced Nursing vol. 77 , ( 2 ) 664 - 680 .

Liao J-Y, Chen P-J, Wu Y-L, Cheng C-H, Yu S-J, Huang C-H, Li C-M, Wang Y-W et al. ( 2020 ) . HOme-based Longitudinal Investigation of the multidiSciplinary Team Integrated Care (HOLISTIC): protocol of a prospective nationwide cohort study . BMC Geriatrics vol. 20 , ( 1 )

Sampson E, Harrison Dening K ( 2020 ) . Palliative and end-of-life care . Oxford Textbook of Old Age Psychiatry , Oxford University Press (OUP)

Hughes JC, Jolley D, Jordan A, Sampson EL ( 2020 ) . Palliative care in dementia: Issues and evidence . Clinical Topics in Old Age Psychiatry ,

Johnson H, Yorganci E, Evans CJ, Barclay S, Murtagh FEM, Yi D, Gao W, Sampson EL et al. ( 2020 ) . Implementation of a complex intervention to improve care for patients whose situations are clinically uncertain in hospital settings: A multi-method study using normalisation process theory . PLOS ONE vol. 15 , ( 9 )

Sampson EL, Barber J, Gillam J, La Frenais F, Lambe K, Laybourne A, Manela M, Marston L et al. ( 2020 ) . Development, feasibility, and acceptability of an intervention to improve care for agitation in people living in nursing homes with dementia nearing the end-of-life . International Psychogeriatrics vol. 33 , ( 10 ) 1069 - 1081 .

Robinson L, Poole M, McLellan E, Lee R, Amador S, Bhattarai N, Bryant A, Coe D et al. ( 2020 ) . Supporting good quality, community-based end-of-life care for people living with dementia: the SEED research programme including feasibility RCT . Programme Grants for Applied Research vol. 8 , ( 8 ) 1 - 254 .

Livingston G, Huntley J, Sommerlad A, Ames D, Ballard C, Banerjee S, Brayne C, Burns A et al. ( 2020 ) . Dementia prevention, intervention, and care: 2020 report of the Lancet Commission . The Lancet vol. 396 , ( Dement Geriatr Cogn Dis 37 2014 ) 413 - 446 .

Nimmons D, Hatter L, Davies N, Sampson E, Walters K, Schrag A ( 2020 ) . Experiences of advance care planning in Parkinson's disease and atypical parkinsonian disorders: a mixed methods systematic review . European Journal of Neurology vol. 27 , ( 10 ) 1971 - 1987 .

Helmer LML, Weijenberg RAF, de Vries R, Achterberg WP, Lautenbacher S, Sampson EL, Lobbezoo F ( 2020 ) . Crying out in pain—A systematic review into the validity of vocalization as an indicator for pain . European Journal of Pain vol. 24 , ( 9 ) 1703 - 1715 .

Lapid MI, Koopmans R, Sampson EL, Van den Block L, Peisah C ( 2020 ) . Providing quality end-of-life care to older people in the era of COVID-19: perspectives from five countries . International Psychogeriatrics vol. 32 , ( 11 ) 1345 - 1352 .

Moore KJ, Sampson EL, Kupeli N, Davies N ( 2020 ) . Supporting families in end-of-life care and bereavement in the COVID-19 era . International Psychogeriatrics vol. 32 , ( 10 ) 1245 - 1248 .

Vestergaard AHS, Sampson EL, Johnsen SP, Petersen I ( 2020 ) . Social Inequalities in Life Expectancy and Mortality in People With Dementia in the United Kingdom . Alzheimer Disease & Associated Disorders vol. 34 , ( 3 ) 254 - 261 .

Moore KJ, Crawley S, Vickerstaff V, Cooper C, King M, Sampson EL ( 2020 ) . Is preparation for end of life associated with pre-death grief in caregivers of people with dementia? . International Psychogeriatrics vol. 32 , ( 6 ) 753 - 763 .

Feast AR, White N, Candy B, Kupeli N, Sampson EL ( 2020 ) . The effectiveness of interventions to improve the care and management of people with dementia in general hospitals: A systematic review . International Journal of Geriatric Psychiatry vol. 35 , ( 5 ) 463 - 488 .

Kochovska S, Garcia MV, Bunn F, Goodman C, Luckett T, Parker D, Phillips JL, Sampson EL et al. ( 2020 ) . Components of palliative care interventions addressing the needs of people with dementia living in long-term care: A systematic review . Palliative Medicine vol. 34 , ( 4 ) 454 - 492 .

Finucane AM, Jones L, Leurent B, Sampson EL, Stone P, Tookman A, Candy B ( 2020 ) . Drug therapy for delirium in terminally ill adults . vol. 1 , ( 1 )

Moore KJ, Crawley S, Cooper C, Sampson EL, Harrison‐Dening K ( 2020 ) . How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end‐of‐life? . International Journal of Geriatric Psychiatry vol. 35 , ( 4 ) 405 - 413 .

Gola AB, Morris S, Candy B, Davis S, King M, Kupeli N, Leavey G, Moore K et al. ( 2020 ) . Healthcare utilization and monetary costs associated with agitation in UK care home residents with advanced dementia: a prospective cohort study . International Psychogeriatrics vol. 32 , ( 3 ) 359 - 370 .

O’Shaughnessy NJ, Chan JE, Bhome R, Gallagher P, Zhang H, Clare L, Sampson EL, Stone P et al. ( 2020 ) . Awareness in severe Alzheimer’s disease: a systematic review . Aging & Mental Health vol. 25 , ( 4 ) 602 - 612 .

Sampson EL, Anderson JE, Candy B, Davies N, Ellis‐Smith C, Gola A, Harding R, Kenten C et al. ( 2020 ) . Empowering Better End‐of‐Life Dementia Care (EMBED‐Care): A mixed methods protocol to achieve integrated person‐centred care across settings . International Journal of Geriatric Psychiatry vol. 35 , ( 8 ) 820 - 832 .

Sampson EL, West E, Fischer T ( 2020 ) . Pain and delirium: mechanisms, assessment, and management . European Geriatric Medicine vol. 11 , ( 1 ) 45 - 52 .

van de Rijt LJ, Feast AR, Vickerstaff V, Lobbezoo F, Sampson EL ( 2019 ) . Prevalence and associations of orofacial pain and oral health factors in nursing home residents with and without dementia . Age and Ageing vol. 49 , ( 3 ) 418 - 424 .

Sawyer JM, Sallnow L, Kupeli N, Stone P, Sampson EL ( 2019 ) . Social networks, social capital and end-of-life care for people with dementia: a realist review . BMJ Open vol. 9 , ( 12 )

Kupeli N, Sampson EL, Leavey G, Harrington J, Davis S, Candy B, King M, Nazareth I et al. ( 2019 ) . Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective . BMC Palliative Care vol. 18 , ( 1 )

Sampson EL, Stringer A, La Frenais F, Higgins S, Doyle M-J, Laybourne A, Livingston G, Leavey G ( 2019 ) . Agitation near the end of life with dementia: An ethnographic study of care . PLOS ONE vol. 14 , ( 10 )

Barrado-Martin Y, Hatter L, Sampson EL, Rait G, Manthorpe J, Smith C, Davies N ( 2019 ) . 52 Experiences of supporting nutrition and hydration for someone living with dementia at the end-of-life: a systematic review of qualitative evidence . BMJ Supportive & Palliative Care . Conference: Future directions of hospice care: IPU or ITU? vol. 9 ,

Kunz M, de Waal MWM, Achterberg WP, Gimenez‐Llort L, Lobbezoo F, Sampson EL, van Dalen‐Kok AH, Defrin R et al. ( 2019 ) . The Pain Assessment in Impaired Cognition scale (PAIC15): A multidisciplinary and international approach to develop and test a meta‐tool for pain assessment in impaired cognition, especially dementia . European Journal of Pain vol. 24 , ( 1 ) 192 - 208 .

van de Rijt LJM, Stoop CC, Weijenberg RAF, de Vries R, Feast AR, Sampson EL, Lobbezoo F ( 2019 ) . The Influence of Oral Health Factors on the Quality of Life in Older People: A Systematic Review . The Gerontologist vol. 60 , ( 5 ) e378 - e394 .

Koffman J, Yorganci E, Yi D, Gao W, Murtagh F, Pickles A, Barclay S, Johnson H et al. ( 2019 ) . Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle . Trials vol. 20 , ( 1 )

Davies N, Schiowitz B, Rait G, Vickerstaff V, Sampson EL ( 2019 ) . Decision aids to support decision-making in dementia care: a systematic review . International Psychogeriatrics vol. 31 , ( 10 ) 1403 - 1419 .

Moore K, Davies N, Kupeli N, Sampson EL ( 2019 ) . Palliative Care . Seminars in Old Age Psychiatry , Cambridge University Press (CUP)

Sampson EL, Feast A, Blighe A, Froggatt K, Hunter R, Marston L, McCormack B, Nurock S et al. ( 2019 ) . Evidence-based intervention to reduce avoidable hospital admissions in care home residents (the Better Health in Residents in Care Homes (BHiRCH) study): protocol for a pilot cluster randomised trial . BMJ Open vol. 9 , ( 5 )

Amador S, Sampson EL, Goodman C, Robinson L, Team SR ( 2019 ) . A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia . Palliative Medicine vol. 33 , ( 4 ) 415 - 429 .

Dening KH, Sampson EL, De Vries K ( 2019 ) . Advance care planning in dementia: recommendations for healthcare professionals . Palliative Care and Social Practice vol. 12 ,

Moore KJ, Lee CY, Sampson EL, Candy B ( 2019 ) . Do interventions that include education on dementia progression improve knowledge, mental health and burden of family carers? A systematic review . Dementia vol. 19 , ( 8 ) 2555 - 2581 .

Crawley S, Moore K, Sampson EL, Vickerstaff V, Claudia C ( 2019 ) . Impact of sociodemographic factors on knowledge of dementia among family carers . INTERNATIONAL PSYCHOGERIATRICS . vol. 31 , 53 - 54 .

Moore KJ, Goodison H, Sampson EL ( 2018 ) . The role of the memory service in helping carers to prepare for end of life: A mixed methods study . International Journal of Geriatric Psychiatry vol. 34 , ( 2 ) 360 - 368 .

Aasmul I, Husebo BS, Sampson EL, Flo E ( 2018 ) . Advance Care Planning in Nursing Homes – Improving the Communication Among Patient, Family, and Staff: Results From a Cluster Randomized Controlled Trial (COSMOS) . Frontiers in Psychology vol. 09 ,

Kupeli N, Candy B, Tamura-Rose G, Schofield G, Webber N, Hicks SE, Floyd T, Vivat B et al. ( 2018 ) . Authors’ Reply to Montoya et al. Comment On: “Tools Measuring Quality of Death, Dying, and Care, Completed After Death: Systematic Review of Psychometric Properties” . The Patient - Patient-Centered Outcomes Research vol. 12 , ( 1 ) 169 - 169 .

Davies N, Manthorpe J, Sampson EL, Lamahewa K, Wilcock J, Mathew R, Iliffe S ( 2018 ) . Guiding practitioners through end of life care for people with dementia: The use of heuristics . PLOS ONE vol. 13 , ( 11 )

van de Rijt LJ, Weijenberg RA, Feast AR, Delwel S, Vickerstaff V, Lobbezoo F, Sampson EL ( 2018 ) . Orofacial Pain During Rest and Chewing in Dementia Patients Admitted to Acute Hospital Wards: Validity Testing of the Orofacial Pain Scale for Non-Verbal Individuals . Journal of Oral & Facial Pain and Headache vol. 33 , ( 3 ) 247 - 253 .

Finucane A, Jones L, Leurent B, Sampson E, Stone P, Tookman A, Candy B ( 2018 ) . 52 Drug therapy for delirium in terminally ill adults: a cochrane systematic review . BMJ Supportive & Palliative Care vol. 8 , ( 3 )

Feast AR, White N, Lord K, Kupeli N, Vickerstaff V, Sampson EL ( 2018 ) . Pain and delirium in people with dementia in the acute general hospital setting . Age and Ageing vol. 47 , ( 6 ) 841 - 846 .

Kupeli N, Candy B, Tamura-Rose G, Schofield G, Webber N, Hicks SE, Floyd T, Vivat B et al. ( 2018 ) . Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties . The Patient - Patient-Centered Outcomes Research vol. 12 , ( 2 ) 183 - 197 .

Bauernfreund Y, Butler M, Ragavan S, Sampson EL ( 2018 ) . TIME to think about delirium: improving detection and management on the acute medical unit . BMJ Open Quality vol. 7 , ( 3 )

van de Rijt LJM, Weijenberg RAF, Feast AR, Vickerstaff V, Lobbezoo F, Sampson EL ( 2018 ) . Oral health and orofacial pain in people with dementia admitted to acute hospital wards: observational cohort study . BMC Geriatrics vol. 18 , ( 1 )

Davis D, Richardson S, Hornby J, Bowden H, Hoffmann K, Weston-Clarke M, Green F, Chaturvedi N et al. ( 2018 ) . The delirium and population health informatics cohort study protocol: ascertaining the determinants and outcomes from delirium in a whole population . BMC Geriatrics vol. 18 , ( 1 )

Llewellyn H, Neerkin J, Thorne L, Wilson E, Jones L, Sampson EL, Townsley E, Low JTS ( 2018 ) . Social and structural conditions for the avoidance of advance care planning in neuro-oncology: a qualitative study . BMJ Open vol. 8 , ( 1 )

Diwell RA, Davis DH, Vickerstaff V, Sampson EL ( 2018 ) . Key components of the delirium syndrome and mortality: greater impact of acute change and disorganised thinking in a prospective cohort study . BMC Geriatrics vol. 18 , ( 1 )

Sampson EL ( 2018 ) . Authors' reply . The British Journal of Psychiatry vol. 206 , ( 2 ) 166 - 167 .

Sampson EL, White N, Leurent B, Scott S, Lord K, Round J, Jones L ( 2018 ) . Behavioural and psychiatric symptoms in people with dementia admitted to the acute hospital: prospective cohort study . The British Journal of Psychiatry vol. 205 , ( 3 ) 189 - 196 .

Sampson E ( 2018 ) . Counselling Older People: A Systematic Review By Andrew Hill & Alison Brettle. Rugby: British Association for Counselling and Psychotherapy. 2004. 92pp. $18.00 (pb). ISBN 190511401X . The British Journal of Psychiatry vol. 188 , ( 6 ) 589 - 590 .

Sampson EL, Blanchard MR, Jones L, Tookman A, King M ( 2018 ) . Dementia in the acute hospital: prospective cohort study of prevalence and mortality . The British Journal of Psychiatry vol. 195 , ( 1 ) 61 - 66 .

Sampson EL, Burns A, Richards M ( 2018 ) . Improving end-of-life care for people with dementia . The British Journal of Psychiatry vol. 199 , ( 5 ) 357 - 359 .

Hughes JC, Jolley D, Jordan A, Sampson EL ( 2018 ) . Palliative care in dementia: issues and evidence . BJPsych Advances vol. 13 , ( 4 ) 251 - 260 .

La Frenais FL, Bedder R, Vickerstaff V, Stone P, Sampson EL ( 2017 ) . Temporal Trends in Analgesic Use in Long‐Term Care Facilities: A Systematic Review of International Prescribing . Journal of the American Geriatrics Society vol. 66 , ( 2 ) 376 - 382 .

Llewellyn H, Higgs P, Sampson EL, Jones L, Thorne L ( 2017 ) . Topographies of ‘care pathways’ and ‘healthscapes’: reconsidering the multiple journeys of people with a brain tumour . Sociology of Health & Illness vol. 40 , ( 3 ) 410 - 425 .

Van Den Noortgate N, Sampson E ( 2017 ) . Pain assessment and management in cognitively intact and impaired patients . Oxford Textbook of Geriatric Medicine , Oxford University Press (OUP)

Van Den Noortgate N, Sampson E ( 2017 ) . Symptom assessment and management at the end of life . Oxford Textbook of Geriatric Medicine , Oxford University Press (OUP)

Dani M, Owen LH, Jackson TA, Rockwood K, Sampson EL, Davis D ( 2017 ) . Delirium, Frailty, and Mortality: Interactions in a Prospective Study of Hospitalized Older People . The Journals of Gerontology Series A vol. 73 , ( 3 ) 415 - 418 .

Sampson EL, Candy B, Davis S, Gola AB, Harrington J, King M, Kupeli N, Leavey G et al. ( 2017 ) . Living and dying with advanced dementia: A prospective cohort study of symptoms, service use and care at the end of life . Palliative Medicine vol. 32 , ( 3 ) 668 - 681 .

Swarbrick CM, Sampson E, Keady J ( 2017 ) . Notes from the hospital bedside: reflections on researcher roles and responsibilities at the end of life in dementia . Quality in Ageing and Older Adults vol. 18 , ( 3 ) 201 - 211 .

Davies N, Lamahewa K, Mathew R, Wilcock J, Manthorpe J, Sampson EL, Iliffe S ( 2017 ) . 14 Managing uncertainty in care for people with dementia at the end of life: the use of heuristics . BMJ Supportive & Palliative Care vol. 7 , ( 3 )

Stringer A, Pritty E, Laybourne A, La Frenais F, Higgins S, Doyle M-J, Leavey G, Livingston G et al. ( 2017 ) . 39 A qualitative study of family carer’s attitudes towards agitation in people with moderate/severe dementia . BMJ Supportive & Palliative Care vol. 7 , ( 3 )

Livingston G, Sommerlad A, Orgeta V, Costafreda SG, Huntley J, Ames D, Ballard C, Banerjee S et al. ( 2017 ) . Dementia prevention, intervention, and care . The Lancet vol. 390 , ( 10113 ) 2673 - 2734 .

Moore KJ, Candy B, Davis S, Gola A, Harrington J, Kupeli N, Vickerstaff V, King M et al. ( 2017 ) . Implementing the compassion intervention, a model for integrated care for people with advanced dementia towards the end of life in nursing homes: a naturalistic feasibility study . BMJ Open vol. 7 , ( 6 )

Moore KJ, Davis S, Gola A, Harrington J, Kupeli N, Vickerstaff V, King M, Leavey G et al. ( 2017 ) . Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods . BMC Geriatrics vol. 17 , ( 1 )

La Frenais F, Livingston G, Cooper C, Marston L, Vickerstaff V, Stone P, Sampson E ( 2017 ) . [O4–05–05]: ARE CARE HOME RESIDENTS WITH UNDIAGNOSED DEMENTIA MORE AT RISK OF ANTIPSYCHOTIC OVERUSE? . Alzheimer's & Dementia vol. 13 , ( 7S_Part_25 ) p1240 - p1240 .

Davies N, Lamahewa K, Mathew R, Wilcock J, Manthorpe JT, Sampson EL, Iliffe S ( 2017 ) . DEVELOPMENT OF HEURISTICS TO GUIDE DECISION MAKING AT THE END OF LIFE FOR SOMEONE WITH DEMENTIA . Innovation in Aging vol. 1 , ( suppl_1 ) 266 - 266 .

Moore KJ, Candy B, Davis S, Harrington J, Kupeli N, Vickerstaff V, Jones L, Sampson EL ( 2017 ) . IMPLEMENTING AN END-OF-LIFE CARE PROGRAMME FOR NURSING HOME RESIDENTS WITH DEMENTIA: ROLE OF CONTEXT . Innovation in Aging vol. 1 , ( suppl_1 ) 266 - 266 .

Downs MG, Blighe A, Powell C, Feast A, Froggatt K, McCormack B, Sampson EL ( 2017 ) . REDUCING RATES OF AVOIDABLE TRANSITIONS TO HOSPITAL FOR NURSING HOME RESIDENTS . Innovation in Aging vol. 1 , ( suppl_1 ) 1256 - 1256 .

Lamahewa K, Mathew R, Iliffe S, Wilcock J, Manthorpe J, Sampson EL, Davies N ( 2017 ) . A qualitative study exploring the difficulties influencing decision making at the end of life for people with dementia . Health Expectations vol. 21 , ( 1 ) 118 - 127 .

Kupeli N, Vickerstaff V, White N, Lord K, Scott S, Jones L, Sampson EL ( 2017 ) . Psychometric evaluation of the Cohen‐Mansfield Agitation Inventory in an acute general hospital setting . International Journal of Geriatric Psychiatry vol. 33 , ( 1 ) e158 - e165 .

Jackson TA, Gladman JRF, Harwood RH, MacLullich AMJ, Sampson EL, Sheehan B, Davis DHJ ( 2017 ) . Challenges and opportunities in understanding dementia and delirium in the acute hospital . PLOS Medicine vol. 14 , ( 3 )

O’Brien JT, Holmes C, Jones M, Jones R, Livingston G, McKeith I, Mittler P, Passmore P et al. ( 2017 ) . Clinical practice with anti-dementia drugs: A revised (third) consensus statement from the British Association for Psychopharmacology . Journal of Psychopharmacology vol. 31 , ( 2 ) 147 - 168 .

Dening KH, King M, Jones L, Sampson EL ( 2017 ) . Healthcare decision-making: past present and future, in light of a diagnosis of dementia . International Journal of Palliative Nursing vol. 23 , ( 1 ) 4 - 11 .

Moore K, Sampson E ( 2017 ) . Advanced dementia and care at the end of life . Dementia, Fifth Edition ,

Teodorczuk A, Harwood R, Sampson E ( 2017 ) . Managing people with dementia in the general hospital . Dementia, Fifth Edition ,

Lautenbacher S, Sampson EL, Pähl S, Kunz M ( 2016 ) . Which Facial Descriptors Do Care Home Nurses Use to Infer Whether a Person with Dementia Is in Pain? . Pain Medicine vol. 18 , ( 11 ) 2105 - 2115 .

Sampson EL, Vickerstaff V, Lietz S, Orrell M ( 2016 ) . Improving the care of people with dementia in general hospitals: evaluation of a whole-system train-the-trainer model . International Psychogeriatrics vol. 29 , ( 4 ) 605 - 614 .

Amador S, Goodman C, Robinson L, Sampson EL ( 2016 ) . UK end-of-life care services in dementia, initiatives and sustainability: results of a national online survey . BMJ Supportive & Palliative Care vol. 8 , ( 4 )

Closs SJ, Dowding D, Allcock N, Hulme C, Keady J, Sampson EL, Briggs M, Corbett A et al. ( 2016 ) . Towards improved decision support in the assessment and management of pain for people with dementia in hospital: a systematic meta-review and observational study . Health and Social Care Delivery Research vol. 4 , ( 30 ) 1 - 162 .

La Frenais F, Bedder R, Stone P, Sampson EL ( 2016 ) . Systematic review of prescribing patterns of analgesic medications for older people living in care homes over time . BMJ Supportive & Palliative Care vol. 6 , ( 3 )

Kupeli N, Candy B, Vivat B, Harrington J, Davis S, Sampson EL, Gola A, Lodwick R et al. ( 2016 ) . Which measures assessing quality of death and dying and satisfaction with care at the very end of life have been psychometrically validated? A systematic review . BMJ Supportive & Palliative Care vol. 6 , ( 3 )

Lichtner V, Dowding D, Allcock N, Keady J, Sampson EL, Briggs M, Corbett A, James K et al. ( 2016 ) . The assessment and management of pain in patients with dementia in hospital settings: a multi-case exploratory study from a decision making perspective . BMC Health Services Research vol. 16 , ( 1 )

Davies N, Mathew R, Wilcock J, Manthorpe J, Sampson EL, Lamahewa K, Iliffe S ( 2016 ) . Erratum to: A co-design process developing heuristics for practitioners providing end of life care for people with dementia . BMC Palliative Care vol. 15 , ( 1 )

Harrison Dening K, King M, Jones L, Vickerstaff V, Sampson EL ( 2016 ) . Correction: Advance Care Planning in Dementia: Do Family Carers Know the Treatment Preferences of People with Early Dementia? . PLOS ONE vol. 11 , ( 8 )

Davies N, Mathew R, Wilcock J, Manthorpe J, Sampson EL, Lamahewa K, Iliffe S ( 2016 ) . A co-design process developing heuristics for practitioners providing end of life care for people with dementia . BMC Palliative Care vol. 15 , ( 1 )

Dening KH, King M, Jones L, Vickestaff V, Sampson EL ( 2016 ) . Advance Care Planning in Dementia: Do Family Carers Know the Treatment Preferences of People with Early Dementia? . PLOS ONE vol. 11 , ( 7 )

Saini G, Sampson EL, Davis S, Kupeli N, Harrington J, Leavey G, Nazareth I, Jones L et al. ( 2016 ) . An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes . BMC Palliative Care vol. 15 , ( 1 )

La Frenais F, Stone P, Sampson EL ( 2016 ) . Analgesic prescribing in care home residents: how epidemiological studies may inform clinical practice . Pain Management vol. 6 , ( 6 ) 561 - 568 .

Oosterman JM, Zwakhalen S, Sampson EL, Kunz M ( 2016 ) . The use of facial expressions for pain assessment purposes in dementia: a narrative review . Neurodegenerative Disease Management vol. 6 , ( 2 ) 119 - 131 .

White N, Leurent B, Lord K, Scott S, Jones L, Sampson EL ( 2016 ) . The management of behavioural and psychological symptoms of dementia in the acute general medical hospital: a longitudinal cohort study . International Journal of Geriatric Psychiatry vol. 32 , ( 3 ) 297 - 305 .

Kupeli N, Leavey G, Moore K, Harrington J, Lord K, King M, Nazareth I, Sampson EL et al. ( 2016 ) . Context, mechanisms and outcomes in end of life care for people with advanced dementia . BMC Palliative Care vol. 15 , ( 1 )

Kupeli N, Leavey G, Harrington J, Lord K, King M, Nazareth I, Moore K, Sampson EL et al. ( 2016 ) . What are the barriers to care integration for those at the advanced stages of dementia living in care homes in the UK? Health care professional perspective . Dementia vol. 17 , ( 2 ) 164 - 179 .

Sampson EL, Lodwick R, Rait G, Candy B, Low J, King M, Petersen I ( 2016 ) . Living With an Older Person Dying From Cancer, Lung Disease, or Dementia: Health Outcomes From a General Practice Cohort Study . Journal of Pain and Symptom Management vol. 51 , ( 5 ) 839 - 848 .

Candy B, Elliott M, Moore K, Vickerstaff V, Sampson E, Jones L ( 2015 ) . UK quality statements on end of life care in dementia: a systematic review of research evidence . BMC Palliative Care vol. 14 , ( 1 )

Jones L, Candy B, Davis S, Elliott M, Gola A, Harrington J, Kupeli N, Lord K et al. ( 2015 ) . Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach . Palliative Medicine vol. 30 , ( 3 ) 279 - 295 .

Davies N, Manthorpe J, Sampson EL, Iliffe S ( 2015 ) . After the Liverpool Care Pathway—development of heuristics to guide end of life care for people with dementia: protocol of the ALCP study . BMJ Open vol. 5 , ( 9 )

Dening KH, Sampson E ( 2015 ) . O-69 Advance care planning in dementia: understanding the preferences of people with dementia and their family carers . BMJ Supportive & Palliative Care . Conference: Oral Abstracts vol. 5 ,

Dowding D, Lichtner V, Allcock N, Briggs M, James K, Keady J, Lasrado R, Sampson EL et al. ( 2015 ) . Using sense-making theory to aid understanding of the recognition, assessment and management of pain in patients with dementia in acute hospital settings . International Journal of Nursing Studies vol. 53 , 152 - 162 .

van der Steen JT, Sampson EL, Van den Block L, Lord K, Vankova H, Pautex S, Vandervoort A, Radbruch L et al. ( 2015 ) . Tools to Assess Pain or Lack of Comfort in Dementia: A Content Analysis . Journal of Pain and Symptom Management vol. 50 , ( 5 ) 659 - 675.e3 .

Brown R, Howard R, Candy B, Sampson EL ( 2015 ) . Opioids for agitation in dementia . vol. 2015 , ( 5 )

Sampson EL, van der Steen JT, Pautex S, Svartzman P, Sacchi V, Van den Block L, Van Den Noortgate N ( 2015 ) . European palliative care guidelines: how well do they meet the needs of people with impaired cognition? . BMJ Supportive & Palliative Care vol. 5 , ( 3 )

Moore KJ, Elliott M, Kupeli N, Davis S, Harrington J, Vickerstaff V, Gola A, Candy B et al. ( 2015 ) . A QUALITATIVE ANALYSIS OF BARRIERS TO FUTURE CARE DISCUSSIONS WITH FAMILY MEMBERS OF CARE HOME RESIDENTS WITH ADVANCED DEMENTIA . BMJ Supportive & Palliative Care vol. 5 , ( 1 )

Kupeli N, Sampson EL, Harrington J, Moore KJ, Elliott M, Davis S, Vickerstaff V, Gola A et al. ( 2015 ) . WHY IS INTEGRATED CARE NOT WORKING IN END OF LIFE CARE FOR THOSE WITH ADVANCED DEMENTIA? FROM THE HEALTH CARE PROFESSIONAL PERSPECTIVE . BMJ Supportive & Palliative Care vol. 5 , ( 1 )

Sampson EL, White N, Lord K, Leurent B, Vickerstaff V, Scott S, Jones L ( 2015 ) . Pain, agitation, and behavioural problems in people with dementia admitted to general hospital wards . Pain vol. 156 , ( 4 ) 675 - 683 .

Van Den Steen JT, Regnard C, Volicer L, Van Den Noortgate NJA, Sampson EL, Enfield B ( 2015 ) . Detecting pain or distress in people with dementia: An appraisal of two strategies . European Journal of Palliative Care vol. 22 , ( 3 ) 110 - 113 .

Sampson EL ( 2014 ) . IS5.03: Advance care planning in dementia . European Geriatric Medicine vol. 5 ,

Elliott M, Harrington J, Moore K, Davis S, Kupeli N, Vickerstaff V, Gola A, Candy B et al. ( 2014 ) . A protocol for an exploratory phase I mixed-methods study of enhanced integrated care for care home residents with advanced dementia: the Compassion Intervention . BMJ Open vol. 4 , ( 6 )

Oosterman JM, Hendriks H, Scott S, Lord K, White N, Sampson EL ( 2014 ) . When Pain Memories Are Lost: A Pilot Study of Semantic Knowledge of Pain in Dementia . Pain Medicine vol. 15 , ( 5 ) 751 - 757 .

Ahmed S, Leurent B, Sampson EL ( 2014 ) . Risk factors for incident delirium among older people in acute hospital medical units: a systematic review and meta-analysis . Age and Ageing vol. 43 , ( 3 ) 326 - 333 .

Vickerstaff V, Sampson E, Scott S, Davis S, Lord K, Harrington J, Elliott M, Kupeli N et al. ( 2014 ) . SATISFACTION OF CARERS OF PEOPLE WITH ADVANCED DEMENTIA: THEIR EXPERIENCES AT THE OF END OF LIFE . BMJ Supportive & Palliative Care vol. 4 , ( 1 )

Candy B, Elliott M, Jones L, Sampson E ( 2014 ) . THE EVIDENCE BASE OF QUALITY STATEMENTS ON ADVANCED DEMENTIA: A SYSTEMATIC REVIEW . BMJ Supportive & Palliative Care vol. 4 , ( 1 )

Sampson EL, Jenagaratnam L, McShane R ( 2014 ) . Metal protein attenuating compounds for the treatment of Alzheimer's dementia . vol. 2014 , ( 2 )

Burbeck R, Low J, Sampson EL, Bravery R, Hill M, Morris S, Ockenden N, Payne S et al. ( 2014 ) . Volunteers in Specialist Palliative Care: A Survey of Adult Services in the United Kingdom . Journal of Palliative Medicine vol. 17 , ( 5 ) 568 - 574 .

Ritchie CW, Newman TH, Leurent B, Sampson EL ( 2014 ) . The association between C-reactive protein and delirium in 710 acute elderly hospital admissions . International Psychogeriatrics vol. 26 , ( 5 ) 717 - 724 .

Perry J, Bell F, Shaw T, Fitzpatrick B, Sampson EL ( 2014 ) . The use of PDSA methodology to evaluate and optimise an inner city memory clinic: a quality improvement project . BMC Geriatrics vol. 14 , ( 1 )

Livingston G, Barber J, Rapaport P, Knapp M, Griffin M, King D, Livingston D, Mummery C et al. ( 2013 ) . Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial . The BMJ vol. 347 , ( oct25 2 )

Knapp M, King D, Romeo R, Schehl B, Barber J, Griffin M, Rapaport P, Livingston D et al. ( 2013 ) . Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial . The BMJ vol. 347 , ( oct25 2 )

Round J, Sampson EL, Jones L ( 2013 ) . A framework for understanding quality of life in individuals without capacity . Quality of Life Research vol. 23 , ( 2 ) 477 - 484 .

Burbeck R, Low J, Sampson EL, Scott R, Bravery R, Candy B ( 2013 ) . Volunteer activity in specialist paediatric palliative care: a national survey . BMJ Supportive & Palliative Care vol. 5 , ( 3 )

Sampson EL, Burns A ( 2013 ) . Planning a personalised future with dementia: ‘the misleading simplicity of advance directives’ . Palliative Medicine vol. 27 , ( 5 ) 387 - 388 .

Lord K, White N, Scott S, Sampson EL ( 2013 ) . THE BEHAVIOUR AND PAIN (BEPAID) STUDY: DEMENTIA PATIENTS WHO DIE IN THE ACUTE HOSPITAL . BMJ Supportive & Palliative Care vol. 3 , ( 1 )

Abdulla A, Bone M, Adams N, Elliott AM, Jones D, Knaggs R, Martin D, Sampson EL et al. ( 2013 ) . Evidence-based clinical practice guidelines on management of pain in older people . Age and Ageing vol. 42 , ( 2 ) 151 - 153 .

Sampson EL, Leurent B, Blanchard MR, Jones L, King M ( 2012 ) . Survival of people with dementia after unplanned acute hospital admission: a prospective cohort study . International Journal of Geriatric Psychiatry vol. 28 , ( 10 ) 1015 - 1022 .

Jones L, Harrington J, Scott S, Davis S, Lord K, Vickerstaff V, Round J, Candy B et al. ( 2012 ) . CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study . BMJ Open vol. 2 , ( 6 )

Brown MA, Sampson EL, Jones L, Barron AM ( 2012 ) . Prognostic indicators of 6-month mortality in elderly people with advanced dementia: A systematic review . Palliative Medicine vol. 27 , ( 5 ) 389 - 400 .

Dening KH, Jones L, Sampson EL ( 2012 ) . Preferences for end-of-life care: A nominal group study of people with dementia and their family carers . Palliative Medicine vol. 27 , ( 5 ) 409 - 417 .

Scott S, Sampson EL, Jones L ( 2012 ) . The Compassion programme: looking at improving end-of-life care for people with advanced dementia . International Journal of Palliative Nursing vol. 18 , ( 5 ) 212 - 217 .

Sampson E, Mandal U, Holman A, Greenish W, Dening KH, Jones L ( 2012 ) . Improving end of life care for people with dementia: a rapid participatory appraisal . BMJ Supportive & Palliative Care vol. 2 , ( 2 )

Chan D, Livingston G, Jones L, Sampson EL ( 2012 ) . Grief reactions in dementia carers: a systematic review . International Journal of Geriatric Psychiatry vol. 28 , ( 1 ) 1 - 17 .

Sampson EL ( 2012 ) . Frailty and dementia: Common but complex comorbidities . Aging & Mental Health vol. 16 , ( 3 ) 269 - 272 .

Dening KH, Greenish W, Jones L, Mandal U, Sampson EL ( 2012 ) . Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study . BMJ Supportive & Palliative Care vol. 2 , ( 2 )

Connolly A, Sampson EL, Purandare N ( 2012 ) . End‐of‐Life Care for People with Dementia from Ethnic Minority Groups: A Systematic Review . Journal of the American Geriatrics Society vol. 60 , ( 2 ) 351 - 360 .

Scott S, Jones L, Blanchard MR, Sampson EL ( 2011 ) . Study Protocol: The Behaviour and Pain in Dementia Study (BePAID) . BMC Geriatrics vol. 11 , ( 1 )

Dening KH, Jones L, Sampson EL ( 2011 ) . Advance care planning for people with dementia: a review . International Psychogeriatrics vol. 23 , ( 10 ) 1535 - 1551 .

Sampson E, Blanchard M, Dening KH, Scott S, Jones L ( 2011 ) . P3‐376: The impact of acute hospitalization on people with dementia: The behavior and pain (BepAid) study . Alzheimer's & Dementia vol. 7 , ( 4S_Part_18 ) s636 - s636 .

Sampson EL, Dening KH ( 2011 ) . Palliative care and end-of-life care . Mental Health and Care Homes , Oxford University Press (OUP)

Watkin L, Blanchard MR, Tookman A, Sampson EL ( 2011 ) . Prospective cohort study of adverse events in older people admitted to the acute general hospital: risk factors and the impact of dementia . International Journal of Geriatric Psychiatry vol. 27 , ( 1 ) 76 - 82 .

Sampson EL, Jones L, Thuné-Boyle IC, Kukkastenvehmas R, King M, Leurent B, Tookman A, Blanchard MR ( 2011 ) . Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention . Palliative Medicine vol. 25 , ( 3 ) 197 - 209 .

Mukadam N, Sampson EL ( 2010 ) . A systematic review of the prevalence, associations and outcomes of dementia in older general hospital inpatients . International Psychogeriatrics vol. 23 , ( 3 ) 344 - 355 .

Livingston G, Leavey G, Manela M, Livingston D, Rait G, Sampson E, Bavishi S, Shahriyarmolki K et al. ( 2010 ) . Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK . The BMJ vol. 341 , ( aug18 1 )

Sampson EL ( 2010 ) . Palliative care for people with dementia . British Medical Bulletin vol. 96 , ( 1 ) 159 - 174 .

Thuné-Boyle ICV, Sampson EL, Jones L, King M, Lee DR, Blanchard MR ( 2010 ) . Challenges to improving end of life care of people with advanced dementia in the UK . Dementia vol. 9 , ( 2 ) 259 - 284 .

Simard M, Sampson EL ( 2010 ) . Dementia: pharmacological and non-pharmacological treatments and guideline review . Cambridge Textbook of Effective Treatments in Psychiatry , Cambridge University Press (CUP)

Sampson EL ( 2009 ) . Hospital admissions in dementia . Supportive care for the person with dementia , Oxford University Press (OUP)

Collins N, Blanchard MR, Tookman A, Sampson EL ( 2009 ) . Detection of delirium in the acute hospital . Age and Ageing vol. 39 , ( 1 ) 131 - 135 .

Goodman C, Evans C, Wilcock J, Froggatt K, Drennan V, Sampson E, Blanchard M, Bissett M et al. ( 2009 ) . End of life care for community dwelling older people with dementia: an integrated review . International Journal of Geriatric Psychiatry vol. 25 , ( 4 ) 329 - 337 .

Candy B, Jones L, Sampson EL ( 2009 ) . Enteral tube feeding in older people with advanced dementia: Findings from a Cochrane systematic review . International Journal of Palliative Nursing vol. 15 , ( 8 ) 396 - 404 .

Sampson EL, Robinson L ( 2009 ) . Editorial . Dementia vol. 8 , ( 3 ) 331 - 334 .

Robinson L, Sampson EL ( 2009 ) . Editorial: End of life care in dementia . Dementia vol. 8 , ( 3 ) 417 - 419 .

Sampson EL, Bulpitt CJ, Fletcher AE ( 2009 ) . Survival of Community‐Dwelling Older People: The Effect of Cognitive Impairment and Social Engagement . Journal of the American Geriatrics Society vol. 57 , ( 6 ) 985 - 991 .

Sampson EL, Candy B, Jones L ( 2009 ) . Enteral tube feeding for older people with advanced dementia . vol. 2009 , ( 2 )

Omar R, Sampson EL, Loy CT, Mummery CJ, Fox NC, Rossor MN, Warren JD ( 2009 ) . Delusions in frontotemporal lobar degeneration . Journal of Neurology vol. 256 , ( 4 )

Bourne RS, Tahir TA, Borthwick M, Sampson EL ( 2008 ) . Drug treatment of delirium: Past, present and future . Journal of Psychosomatic Research vol. 65 , ( 3 ) 273 - 282 .

Sampson EL, Candy B, Jones L ( 2008 ) . Enteral feeding for older people with advanced dementia . Cochrane Database of Systematic Reviews ( 3 )

Sampson EL, Thuné-Boyle I, Kukkastenvehmas R, Jones L, Tookman A, King M, Blanchard MR ( 2008 ) . Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention . BMC Palliative Care vol. 7 , ( 1 )

Sampson EL, Jenagaratnam L, McShane R ( 2008 ) . Metal protein attenuating compounds for the treatment of Alzheimer's disease . Cochrane Database of Systematic Reviews ( 1 )

Namnyak M, Tufton N, Szekely R, Toal M, Worboys S, Sampson EL ( 2007 ) . ‘Stockholm syndrome’: psychiatric diagnosis or urban myth? . Acta Psychiatrica Scandinavica vol. 117 , ( 1 ) 4 - 11 .

Mukadam N, Ritchie CW, Sampson EL ( 2007 ) . Cholinesterase inhibitors for delirium: what is the evidence? . International Psychogeriatrics vol. 20 , ( 2 ) 209 - 218 .

Sampson EL, Dover D, Mandell M, Pant A, Blanchard MR ( 2007 ) . Personal identification (PIN) numbers: a new cause of financial exclusion in older people . International Journal of Geriatric Psychiatry vol. 22 , ( 5 ) 492 - 493 .

Whitwell JL, Sampson EL, Loy CT, Warren JE, Rossor MN, Fox NC, Warren JD ( 2007 ) . VBM signatures of abnormal eating behaviours in frontotemporal lobar degeneration . NeuroImage vol. 35 , ( 1 ) 207 - 213 .

Sampson EL, Raven PR, Ndhlovu PN, Vallance A, Garlick N, Watts J, Blanchard MR, Bruce A et al. ( 2006 ) . A randomized, double‐blind, placebo‐controlled trial of donepezil hydrochloride (Aricept) for reducing the incidence of postoperative delirium after elective total hip replacement . International Journal of Geriatric Psychiatry vol. 22 , ( 4 ) 343 - 349 .

Sampson EL ( 2006 ) . Reply . Age and Ageing vol. 35 , ( 4 ) 452 - 452 .

Sampson EL, Gould V, Lee D, Blanchard MR ( 2006 ) . Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study . Age and Ageing vol. 35 , ( 2 ) 187 - 189 .

Whitwell JL, Sampson EL, Watt HC, Harvey RJ, Rossor MN, Fox NC ( 2005 ) . A Volumetric Magnetic Resonance Imaging Study of the Amygdala in Frontotemporal Lobar Degeneration and Alzheimer’s Disease . Dementia and Geriatric Cognitive Disorders vol. 20 , ( 4 ) 238 - 244 .

Sampson EL, Ritchie CW, Lai R, Raven PW, Blanchard MR ( 2005 ) . A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia . International Psychogeriatrics vol. 17 , ( 1 ) 31 - 40 .

Bashir N, Ahmed N, Singh A, Tang YZ, Young M, Abba A, Sampson EL ( 2004 ) . A precious case from Middle Earth . vol. 329 , is. 7480 , BMJ

Cagnin A, Rossor M, Sampson EL, MacKinnon T, Banati RB ( 2004 ) . In vivo detection of microglial activation in frontotemporal dementia . Annals of Neurology vol. 56 , ( 6 ) 894 - 897 .

Chan D, Walters RJ, Sampson EL, Schott JM, Smith SJ, Rossor MN ( 2004 ) . EEG abnormalities in frontotemporal lobar degeneration . Neurology vol. 62 , ( 9 ) 1628 - 1630 .

Sampson E, Mukherjee S, Ukoumunne OC, Mullan N, Bullock T ( 2004 ) . History of deliberate self-harm and its association with mood fluctuation . Journal of Affective Disorders vol. 79 , ( 1-3 ) 223 - 227 .

Sampson EL, Warren JD, Rossor MN ( 2004 ) . Young onset dementia . Postgraduate Medical Journal vol. 80 , ( 941 ) 125 - 139 .

Pijnenburg YAL, Sampson EL, Harvey RJ, Fox NC, Rossor MN ( 2002 ) . Vulnerability to neuroleptic side effects in frontotemporal lobar degeneration . International Journal of Geriatric Psychiatry vol. 18 , ( 1 ) 67 - 72 .

Sampson E, Conran J, Harvey RJ ( 2000 ) . Understanding and managing fronto-temporal dementia . CPD Bulletin Old Age Psychiatry vol. 2 , ( 2 ) 31 - 36 .

Sikdar S, Ayonrinde O, Sampson E ( 1998 ) . Physical dependence on zopiclone . The BMJ vol. 317 , ( 7151 )

Ayonrinde O, Sampson E ( 1998 ) . Physical dependence on zopiclone. Risk of dependence may be greater in those with dependent personalities . The BMJ vol. 317 , ( 7151 )